tag:blogger.com,1999:blog-7773853689095331267.post4307405745250683720..comments2023-05-23T05:01:35.377-04:00Comments on JAM sessions: Lessons learned through a micro-preemie: Day 16 - breathingLaura Maikatahttp://www.blogger.com/profile/14053957631788003703noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-7773853689095331267.post-27199901988953507422014-09-05T11:49:56.019-04:002014-09-05T11:49:56.019-04:00Hi Lizzie! Sorry for the delayed response.
I reco...Hi Lizzie! Sorry for the delayed response.<br /><br />I recommend more than anything making the NICU a new normal for now. Set a schedule for yourself so you can have time both with your boys and your precious girl. This is especially important if (like me) you end up going back to work during the NICU stay and saving the rest of your FMLA time off for when she comes home.<br /><br />Either me or my partner were at the hospital every day, sometimes multiple times a day, always for hours. It was hard not to always be there, but knowing that we WOULD be there helped us get by when we weren't around -- helped us to invest in our kids at home better and feel less guilty.<br /><br />I found that the closer I got to taking him home, the more comfortable I was with his cares. It was still a little scary -- he came home on some medical equipment and in the middle of RSV season (cold/flu season) but the more time I spent with him, the better I got at understanding his care, and the more confident I was in my ability to provide that care.<br /><br />I read your care page -- and I totally understand how inconsistent nurses can be draining. Have you talked to the hospital social worker about this? Mine was a great resource when it came to finding primary nurses. It took me months, though. But we were there many months, so it was worth it.<br /><br />Best to you on your journey!Laura Maikatahttps://www.blogger.com/profile/14053957631788003703noreply@blogger.comtag:blogger.com,1999:blog-7773853689095331267.post-89988561178854309482014-08-27T10:10:11.477-04:002014-08-27T10:10:11.477-04:00Hi, I read your story because it sounded familiar ...Hi, I read your story because it sounded familiar to mine. my water broke at 22 weeks and my daughter was born at 23 weeks. My first girl ( I have two boys) my doctor told us she was already gone before I had her and they told us to make funeral arrangements. She is 38 days old today and ever since she had the hydrocortisone for her lungs shes been getting stronger. I was wondering if you could share any thoughts or things you did to make it go by quicker. I know she will come home one day but Im also very scared of bringing her home. If you want you can read her story at http://www.gofundme.com/believinginfaith theres a lot more to her story and I wish I had chose a different dr. My name is lizzie by the way and my daughter is faith. :)Anonymousnoreply@blogger.com